Blog Archives

CHI x 2, Wally, Winning The Lottery Again, A 4th Son and The Pinnie

Our recent Providence Running For Rare weekend evoked many emotions, but we think happiness and gratitude top them all. We are so happy to have had the opportunity to be part of this amazing group, and we are grateful for

Posted in Patient Stories

Running For Rare-Christopher’s story

team-2014

Our son Christopher has Hyperinsulinism (HI). He was diagnosed at 7 months of age after an observed seizure while we were on vacation in North Conway NH. At the local ER testing revealed his blood sugar level was only 27.

Posted in Patient Stories

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Welcome to Running for Rare Diseases

Marathon runners dedicated to making a positive impact on the lives of people with serious diseases have teamed up with NORD to make a difference. Click here for more info.

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