Blog Archives

To our Patient Partners…

I have a confession to make. It has been ten days since the 2014 Boston Marathon, and I have not run a single step since. I haven’t laced up my sneakers, I haven’t broken a sweat, I haven’t played even

Posted in Uncategorized

I Run for Quinn

Eileen and Quinn in field

On Monday, April 15th, 2013, my husband and I ran the 117th Boston Marathon while I was 14 weeks pregnant.  Six months later, we welcomed to the world a beautiful baby girl that we named Emerson.  She joined her two

Posted in Patient Stories, Running Stories

Reflections on a Clinical Trial

Below is an essay written by my 2013 patient partner, Gail Rosenberg.  Gail lives with a disease called Idiopathic Hypoparathyroidism. Sometimes, it’s possible to recall the exact moment when your life has changed forever.  One such moment for me came

Posted in Patient Stories

Enter your email address to subscribe to this blog and receive notifications of new posts by email.

Join 243 other subscribers

Boston Marathon

weeks
-1
-8
days
0
-4
hours
-1
-1
minutes
-3
-7
seconds
-3
-4

New York City Marathon

weeks
-4
-1
days
0
-5
hours
0
-9
minutes
-3
-7
seconds
-3
-4

Welcome to Running for Rare Diseases

Marathon runners dedicated to making a positive impact on the lives of people with serious diseases have teamed up with NORD to make a difference. Click here for more info.

Twitter

Recent Comments