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Amelia’s Providence Experience

My name is Karen.  My daughter Amelia participated as a RARE Community Partner as part of the Providence Half Marathon/Marathon weekend.  Her running partner is Phil. Amelia has a rare medical diagnosis called Congenital Hyperinsulinism (HI); only 1 in 50,000

Posted in Patient Stories

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Boston Marathon

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New York City Marathon

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Welcome to Running for Rare Diseases

Marathon runners dedicated to making a positive impact on the lives of people with serious diseases have teamed up with NORD to make a difference. Click here for more info.

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