Category Archives: Uncategorized

My First Heartbreak… Hill

This weekend was the first time this year we met as a team to complete our first weekend long run as part of our training program. It was also the first time in my life that I climbed the Newton … Continue reading

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Confession

So, I took the Holidays off from running.  <Eek!>  That’s a whole 2 months off from running (well, a part from a few fun 5Ks…which they don’t really count because is it a training run if you are in costume … Continue reading

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Hashtag #running4rare

In the spirit of simplifying our social media and web presence and reducing keystrokes, we now have harmonized our team social media accounts as running4rare: http://running4rare.org http://twitter.com/running4rare http://instagram.com/running4rare http://facebook.com/running4rare You can reach the running team by sending email to the … Continue reading

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Those Silent Tears #8

“Un Año Nuevo, Una Vida Nueva,” said one of the doctors years later in English to me. Spring 2008-From time to time, my daughter, at almost 4 years old, would try on my wigs and just laugh innocently as she danced … Continue reading

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New runner

Dear all Arrived from France in September and I am honored to start this 2015 challenge with Running for Rare Diseases Marathon Team. I would like to thank you all, as this project reminds me the deep reason of my … Continue reading

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The Most Selfish Thing I’ve Ever Done

This is a letter I wrote to my family and friends (obviously) and decided to share on my personal blog as well as here because I think many others are feeling similar to me – anxious, excited, terrified – at … Continue reading

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Those Silent Tears #7

June 2007 I underwent an abbreviated session of IVIG. I was referred to a Hematologist and underwent my first bone marrow biopsy. I did not know what to expect, so I am assuming I was a bit more relaxed for the … Continue reading

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Thoses Silent Tears #6

January 2007 I became violently ill, extremely weakened and no longer had the balance to even walk. I crawled to get to the bathroom and could only wash off in the bathtub. The EMS calls became more and more frequent. … Continue reading

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We will run 1000 miles

A few days ago, I completed my 1000th mile as a member of the Genzyme Running Team with fellow team members Jessi and Phil. Over the past two years through our weekly Tuesday morning runs in Cambridge, training runs and … Continue reading

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Those Silent Tears #5

June 2006 I consulted with a Specialist who was now primarily treating pediatric patients.  I had seen him a few years back for pseudo-anaphylactic episodes and difficulty conceiving.  Little did we know those would eventually become extremely important clues to my ultimate … Continue reading

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