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Never Thought I’d Become a Marathoner, But Here I Am

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Hey all! First of all, thank you for taking the time to give me a few minutes of your time to discuss my marathon training and my Community Partner, Tara Notrica. My name is Kaitlin Bartlett, I’m 29 years old

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“March”-ing Through Together

While I often joke that the reason I am running the Boston Marathon is so I can buy one of the jackets, the real reason is I wanted to do that one final thing I had yet to do as

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Howdy from Austin!

I’m Melissa, the resident blogger for the Emerson Austin team. This is the first time that our company has participated with Genzyme and New England Controls in Running for Rare Diseases.  Our team is made up of 11 runners (well

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Live Music Pub Night

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My Promise

A year and a half ago I joined Genzyme.  I had heard of the company and knew the name but before I interviewed with them I didn’t know their mission and the passion people have to find ways to help

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The Most Selfish Thing I’ve Ever Done

This is a letter I wrote to my family and friends (obviously) and decided to share on my personal blog as well as here because I think many others are feeling similar to me – anxious, excited, terrified – at

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Wanted: Passionate Patient Partners

All of us on the Running for Rare Diseases Marathon Team Board are getting really excited about the new season. For weeks now we have been pouring over the applications of all the runners who want to join us for

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Why Rare Disease Day Matters

Last holiday season, I organized a gift-wrapping fundraiser for the National Organization for Rare Disorders (NORD) at a bookstore. One of my “customers” jokingly said, “Rare diseases? Right, because you wouldn’t want to raise funds for any of those common

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Welcome to Running for Rare Diseases

Marathon runners dedicated to making a positive impact on the lives of people with serious diseases have teamed up with NORD to make a difference. Click here for more info.

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