Blog Archives

Running is easy, blogging is hard….

Writing down your thoughts has to be one of the hardest things to do…. Those that know me even in the slightest bit know that I truly enjoy chatting with people. So, writing something for the Running For Rare blog

Posted in Running Stories, Uncategorized Tagged with: ,

Never Thought I’d Become a Marathoner, But Here I Am

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Hey all! First of all, thank you for taking the time to give me a few minutes of your time to discuss my marathon training and my Community Partner, Tara Notrica. My name is Kaitlin Bartlett, I’m 29 years old

Posted in Running Stories, Uncategorized Tagged with: , , , , , , , , ,

Wow! How do I say thank you!

It’s hard to believe as I sit here in Oregon experiencing a rare 80 degree day that one week ago today I was at milepost 14.5 in pouring rain experiencing my first marathon and waiting for my partner Lisa to come

Posted in Patient Stories, Running Stories, Uncategorized Tagged with: , , , , , , , , ,

Boston For Bertrand

Where has the year gone?  How can it be that the Boston Marathon is 3 days from now?  Have I done enough training?  Am I ready?!  Do I have all activities covered for the kids?  I need to pack…finish work

Posted in Patient Stories Tagged with:

One Person

Several years ago my husband and I went to the JFK Library.  As you leave the museum they shuffle you through the gift shop, like all museums do.  As we wandered through the store I saw this magnet. Today this

Posted in Uncategorized Tagged with: ,

Nerves

This is not about running. I don’t know how many times we’ve said that, and I feel like I am a prime example, because there’s no way I would do this if it was about running. I do it because

Posted in Running Stories Tagged with: , , , , , , , , ,

“March”-ing Through Together

While I often joke that the reason I am running the Boston Marathon is so I can buy one of the jackets, the real reason is I wanted to do that one final thing I had yet to do as

Posted in Patient Stories Tagged with: , , , , , , ,

Challenge Accepted and Met!

    My name is Kelly and I am Bug’s Mom.  I want to share our experience so far… The search for a diagnosis for a rare disease is much like running I suspect. You run a bit each day,

Posted in Patient Stories, Uncategorized Tagged with: ,

Songs, playlists, memories… forever

What if you had the opportunity to associate yourself with a song such that every time the song was played the listener envisioned your smiling face?    Over the past two years I have held ‘Playlist Fundraisers’ where co-workers, friends and family

Posted in Running Stories Tagged with: , , ,

Overcoming the February Funk

I feel like a broken record complaining about the snow. But for the past 6 weeks, it’s all anyone in Boston has talked about. And as ridiculous as it might sound to complain about something as basic as the weather,

Posted in Running Stories Tagged with: , , , , , , , , , , , ,

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